a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Wednesday, January 14, 2015

Dean's Quarterly CF Clinic (Jan 2015)

Dean had his quarterly CF clinic appointment yesterday. Our personal goal for Dean at this appointment was to reach 41 pounds...he weighed in at an even 42! Our little over-achiever. 7 specialists, 1 culture, muscle measurements, countless questions, 2 add'l scripts and off we go with our man of steel.