a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Saturday, March 30, 2013

Happy 3rd Birthday Dean!



Dear Dean,

Happy 3rd Birthday little man. You are a crazy awesome 3 year old now. Even since you could talk, you have made us laugh because you are so sarcastic. It’s amazing how much like your dad you are. J There are so many things you have grown to love:

·         garbage trucks, taking out the trash and your flourescent garbage man vest

·         your favorite lunch of peanuts, salami, cheese and apples

·         strawberry italian ice and slushies

·         giving gifts to people

·         dora, bob the builder and pablo – treatment time just flies by with these friends

·         building houses and knocking them down like the big bad wolf with Obba

·         the sunshine on your face, taking walks, getting the mail

·         singing your Hosanna song (over and over, louder and louder)

 

There are so many things you know how to do:

·         make us laugh; you have such a powerful, shoulder shaking laugh

·         make us smile when you run to the door to give Cali a big hug when she walks in from school

·         giggle like there is no tomorrow when Dad tickles you

·         roll around and hold your own when Owen wrestles you

·         making “smoodies” with Evie

·         telling knock-knock jokes that don’t make sense but we laugh because your laugh is infectious

·         make your aunts laugh by calling them "uncle"

·         cooking and shopping with mom (and our quick trips to the museum)

 

There are so many things you shouldn’t know about/have to endure at this young of an age:

·         why you have to so frequently wash your hands and use “hanitizer” to get rid of germies, they’re everywhere, right buddy?

·         why having too many fruit snack and too much sugar hurts your belly

·         why you need to wear a mask when you walk into your doctors appointments

·         blood drawn, annual x-ray’s, quarterly throat cultures, quarterly clinic appointments

·         why your BMI is measured at age 2

·         why all the people in your clinic visits are covered head to toe and you can only see their eyes and hair

·         breathing and respiratory clearance treatments first thing in the morning and last thing and night

We pray that you will always have the desire to help and give to others. We pray that you continue to enjoy each and every day and relish the simple things in life, like playing, making others smile by letting them know they they’re your “friendy” or that you “wuv” them. Snuggling up with your Omma, Obba, Grandma, Gigi or Grandpa and making them know that your love comes right from the heart. We pray that you will always be as strong as you have been these past 3 years and that you’ll always be an example of just how great of a blessing God sends to Earth. We promise you that we’ll fight every day for you. We’ll enjoy the time we have with you, your brother and your sisters but we will not stop fighting until a cure for CF is found. We promise. We love you little buddy, you are our deano sheano cappuchino.

Love, Dad & Mom

To help us smash CF for Dean:  http://www.cff.org/Great_Strides/JimandErinBurns

 



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