a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Sunday, May 5, 2013

Info on Dean's Great Strides Walk and Chillin' & Grillin' for a Cure

Our Great Strides walk is on Saturday May 18th at Centennial Park in Orland Park, Il.  Centennial Park is large and the best place to park is in the Metra station (10401 153rd Street) and walk across to the fields.  Registration and light snacks at 9:30 with a kick-off speech at 11, followed by the 2.5mile stroll around the park and a boxed lunch around noon.  Bring your bag chairs, strollers, wagons, scooters, camera and an umbrella or sun screen.  Thank you to the amazing group of people that have already registered and helped us fundraise by reaching their family and friends - we're at 50% of our 2013 goal of $30k!  Pre-register/donate for the walk here: 
 
We're bringing back the Chillin' & Grillin' for a Cure this year on Saturday June 8th from 3-9pm on Yellow Finch Lane in Frankfort, Illinois.  You can see the lineup of events and prepurchase tickets at http://www.cff.org/great_strides/CandG.  Tickets are discounted through May 31 and include your food, drinks, music by Poochamungas and Cannonball, bounce house (supplied by Hawkinson Kia, Hawkinson Nissan), adult bag tournament and kids crafts, games and activities (Art4Clowns will be here again with the Caricatures, face painting and balloon artist and Frankfort Black Belt Academy will host mini Tae Kwon Do sessions).  We will have a separate rib competition and a ton of raffles (including 4 one-day park hopper passes to Disney, a basket by Beam, Inc., 31, movie passes, Museum of Science & Industry, Shedd Aquarium tickets, rounds of golf, minor league hockey and baseball tickets, housewares, kids summer fun basket, wine and so much more).  Like us on Facebook to get more frequent updates:  www.facebook.com/eatpraydean.
 
Our little man turned 3 on March 30th and is full of excitement and "gweat" ideas. Healthwise, he's doing well digestively but recently had to increase his daily respiratory therapy routine after his annual X-ray showed additional inflammation and mucus build-up in the lungs. In true Dean form, he's taking the extra daily meds like a trooper. 3 inhaled and nebulized meds and a vest session in the morning before his day starts and a vest session in the evening before we wrap up our day is his norm. Phase 3 Clinical trials start in a few weeks for the combo of drugs that we pray will be his cure. It's so close, it's hard to contain the excitement and feeling of hope. Thank you for being a part of this, for your support and your prayers for his health and his cure. 
 
With love and thanks,
Jim & Erin
www.eatpraydean.com 


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