a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Thursday, January 31, 2013

Team CF opportunities and opportunity to win Blackhawks tickets!!

Hello everyone!!  There is a lot going on this year!  As usual, we’ll be gathering for our 3 mile Great Strides walk on Saturday May 18th and our 2013 Chillin’ & Grillin’ for a Cure on Saturday June 8th but we couldn’t wait until our annual letter to share these exciting opportunities with Team CF to achieve your personal fitness goals while raising awareness and funds in pursuit of a cure for those living with Cystic Fibrosis.  As a quick update, Dean is doing awesome, growing, gaining wait, keeping those lungs clear and praying for health.  If you are ready to challenge yourself to running, cycling or climbing and fundraising for a cure, here are some great opportunities...
As incentive, anyone participating with Team Eat.Pray.Dean for Team CF will be eligible to win a set of Blackhawks tickets to the March 6th game vs. Colorado Avalanche.  You’ll get one raffle ticket for each $100 you raise as of 9 am on Friday March 1st.  Winner will be announced on March 1st.

·         Shamrock Shuffle (Sunday April 7) - Team CF has its first ever presence as a Shamrock Shuffle charity.  If you’re a veteran Shuffler or would like to kick-off your 2013 running season and want to help us raise money for the Cystic Fibrosis Foundation register before it closes and select the Cystic Fibrosis Foundation in the charity section of the registration.  Benefits with Team CF include welcome Kit including: training tips and fundraising tools, exclusive Team CF racing singlet, virtual and in-person training options with Run for Change coaching and personal online fundraising website. (Registration = $45; Fundraising requirement = $250)
·         Barrington 5K (Sunday June 2) – A scenic 3.1 mile course on the trail path between Citizens Park and Cuba Marsh in Barrington, Illinois. Chip timing, rest stops, and medical support will be available. Registration begins at 7:00 am and race takes off at 8:00 am.  Click on Join My Team to register. (Registration = $ 25; Fundraising requirement = $100) 
·         CF Cycle for Life (Saturday September 7) – your choice of a fully-supported ride with route options of 25 miles and 65 miles. From breakfast to our cycle post party, you can enjoy; fully stocked rest stops every 10 - 12 miles, bike mechanics, ride marshals and plenty of support vehicles along the route.  Click on Join my Team to register.  (Registration = $25 ; Fundraising requirement = $150)

·         Chicago Marathon (Sunday October 13) – We had 4 runners last year for Eat. Pray. Dean raise a crazy amount of money and awareness for CF.  If you’ve already committed to running and haven’t aligned with a charity, please consider raising money for CF.  Register with Team CF today and we'll send you a reminder to register for the marathon on February 19th via the Bank of America Chicago Marathon website!  Last year Marathon registration reached capacity in just 7 days, and this year it's projected to close in just 24-48 hours! Benefits with Team CF include welcome Kit including: training tips and fundraising tools, exclusive Team CF racing singlet, kickoff to marathon training event, pre and post Marathon Team Celebration, virtual and in-person training options with Run for Change coaching and personal online fundraising website.  Fax Team CF registration form back to Liz Thompson at 312-236-2797.  (Registration = $190; Fundraising requirement = $1,200)

·         Climb for Life (December 2013) - more details announced as available.

·         Pick your Own Race - if you're already signed up for an event this year and would like to help raise the vital funds to support cystic fibrosis research, we welcome your support!  Jim's doing the Muncie 70.3 in July if anyone would like to join him (hint, hint)

If you have any questions for us, let us know.  You can also contact Liz Thompson at the CFF (ethompson@cff.org or 312.236.4491x108) for more details about any of these events. 

Send us an email if you have registered for any of the above events to fundraise with us so we can make sure to get you entered into the Blackhawks raffle!  Thank you for your commitment to help us raise funds and Add Tomorrows.

Jim & Erin

Wednesday, January 2, 2013

Happy 2013

As always the Holidays flew by with all the excitement of a few week(s) off school and work.  We kicked off the season making gingerbread houses, celebrating with a special Christmas service with Mom, Christmas Eve with the Dad & Peg and the cousins complete with a special appearance by Gorilla Santa (that is entirely it's own post) and Christmas Morning with Omman & Obba and a special visit from Uncle Stevie.  2100 miles apart can seem to be shortened with email, phone, texts and facetime but nothing can take away from a giant hug and quality face to face time.  Carrying on old traditions, starting new ones, whatever the case, celebrating Christmas with those you are closest to is so very special and important to giving the kids a lasting foundation of love.

A few other exciting things helped close out our 2012...

With preschool, Evie was an angel during the annual reenactment of the Nativity.  The innoncence on her little face during the play was yet another reminder to me of how precious these little ones really are and how I need to appreciate her for who she is and pray for who she will become.

Evie was an Angel at the Nativity plan - December 2012
Cali auditioned for and got the part of a reader during some of the Parkview services.  After the worship team performed the trans siberian orchestra, they had an "emergency Christmas meeting" video (which was hilarious) and then Cali's part kicks in (about 7 minutes into it).  Here is the link if you'd like to see:  Cali's reads at Parkview's Christmas Service

Cal reading at Parkview's Christmas Service - Dec 23, 2012
One things I have always struggled with was the WHY of things.  Jim is by far a more successful optimist than I but I'd still do look more at the positive than the negative but I have always had a hard time understanding the why.  I once heard some wise words that even if you could explain and understand the why, you still have the WHAT.   So very true. The timing is incredible as we heard this a bit after Dean was diagnosed with CF.  This past weekend, the sermon was comforting as well.  It centered around the kingdom of Istrel torn in two after the death of King Solomon but the take away for me was that we're not promised a life of no pain or an easy life but we can get through it if we "yoke" ourselves to Jesus and follow him.  I've always known this but the imagery is greatly comforting.  I feel like it was a release for me...the final click that I needed to settle the incessant why that pops into my head.  Here is the sermon if you're interested in it:  The Story sermon from Dec 28/29, 2012 

So, we ring in 2013 with the kiddos at our side...and looking forward to another great year all around.  One of health, truth, love, faith and a focus on truly making a difference in and outside our home.  We're working hard  for our cure, have some great events and ideas in the words for this fundraising year and most importantly Dean has been antiobiotic free for 12 months...a HUGE positive in the CF realm!!  There are tons of opportunities to help fundraise this year (check out the list at the bottom) and let us know if you're up for any of them.  Wishing you a 2013 full of comfort and joy. 

January 1, 2013
Team Eat. Pray. Dean events*
May 18 - Orland Park Great Strides - join team Eat. Pray. Dean for a 3 mile walk
Date TBD - Eat. Pray. Dean Chillin & Grillin for a Cure
June 22 - San Rafeal Park Reno Great Strides - join team Eat. Pray Dean for a 3 mile walk
* If you're out of town and willing to walk for us in your own city or one near to you, let us know and we'll get it all worked out and connected to our team.

Calendar Dates for Team CF events**
April 7 - 8k Shamrock Shuffle
June 2 - Barrington 5K
September 7 - CF Cycle for Life (25 or 65miles) $13 registration through Jan 7!!
Sept 27 - 29 - Extreme Hike in the Manistee National Forest in Western Michigan (25 miles in one day)
October 13 - 26.2 mile Chicago Marathon feb 19th registration starts at noon; expected to sell out FAST!
Winter 2013 - CF Climb for Life

** If you're doing any of these events, please consider joining Team CF and you can help us raise money while achieving your own goals!  Check out them Eat. Pray. Dean at the 2012 Chicago Marathon.  Contact us or Liz Thompson to register for these Team CF events:  ethompson@cff.org or 312.236.4491

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