a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Wednesday, July 10, 2013

Thank you for a super successful Great Strides walk in Reno!

A few weeks back, Aunt Karen captained a Great Strides Walk in Reno, Nevada at beautiful San Rafael Park.  The team was small in number but mighty in love for Dean and our cause.  Aunt Dor and Uncle Hank joined Aunt Karen and Uncle Rod for the 5K sporting the Team Eat. Pray. Dean shirts and raising both awareness in Reno as well as over $1,000 for CF research.  They made connections with both the CF staff and local families throughout this process.  Among all the amazing advancements happening in the CF world, we're finding some interesting CF connections within our family that is driving this team to even further increase their participation in so many ways.  It's hard not to think with all this support that we're going to kick this disease.  Thank you Aunt Karen and Dor, Uncle Rod and Hank for representing us in Reno.  Thank you to all of Aunt Karen's donors and benefactors that helped her raise money!  We truly appreciate all of the work and love that you put into helping us and Dean and could not do this without all of you.   

Great Strides Reno 2013
We continue to be blessed with a full year of fundraising activities with help from people all over.  If you got in on our July CF Madness raffle, check out the winners so far via the link below.  If you are in Frankfort, we are ecstatic that the CFF is the receipient of this years Frankfort Neighborhood Softball Challenge and looking forward to cheering on our team and all of the other amazing people that live in this great suburb!  Oberweis in Mokena is hosting a fundraiser where a percentage of the proceeds from our group will go back to us.  Frankfort Black Belt Academy is offering a donation to all those that sign up as a result of our team (just mention how you heard about them when you take a trial session).  Tommy Hayes is leading the pack fundraising for the Team CF Cycle for Life for Team Eat. Pray. Dean and we have an amazing crew of people joining us for the ride in Geneva in September.  Aunt Dor and Uncle Hank are taking the time to raise awareness to their friends in California in October by participating in a Great Strides walk and Candy is wrapping up the year for us by leading a team in Chicago's Climb for Life.  We can't stop hoping that all of your efforts will enable us to share a lifelong of dreams and memories with our little guy. 

We love you.

Jim & Erin

July: Click here for JULY CF MADNESS Winners
August 4: Frankfort Neighborhood Softball Challenge
August 8: Oberweis Fundraiser in Mokena
November 10: CF Climb for Life
Ongoing ways to help
  • Try out your Tae Kwon Do skills at Frankfort Black Belt Academy who will donate back to us for every summer program enrollment
  • Raise money for CF as you take on your next challenge (marathon, bike, swim, run, etc). 
  • Be an organ donor

Continued thank you's to: Jason Inc, Assembled Products, Ozinga, Poochamungas, Cannonball, Cross Technology, Peace Community Preschool, Tomlinson Law Office, Frankfort Black Belt Academy, Avid Printers, Hawkinson Nissan, Hawkinson Kia, Portable John, Inc., Treasured Smiles for your support.