a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Saturday, June 15, 2013

2013 Chillin' & Grillin' for a Cure recap and slideshow

450+ people, 8 dedicated rib chefs (4 with additional “fluff”), a boatload of meat (this is funny to those that now know we don’t eat it anymore), a phenomenal food crew, bartender (and estimator) extraodinaire, 2 amazing bands, a Nemo jumpy, F U N kids games, desserts GALORE, 66 raffle baskets decorated and organized to perfection, kids knife hand striking and learning self-defense, a panel of rib judges, a street full of the world’s most supportive neighbors, a birthday, parents of friends, siblings of friends, future in-laws, a popcorn machine, 3 of the worlds greatest grillers, untiring volunteers, nieces, nephews, cousins, babies, dogs, love, laughter, Grandma, Omma, Obba, Grandpa, Gigi, aunts, uncles, grandparents, godparents, aquaintances turned friends, a friend and sister-in-law that I would love to go into an event planning business with, wine, lemonade, water, a tower ladder firetruck, countless friends and family, one amazing God all for one unbelievably inspiring little boy.

That paragraph doesn’t do the day justice but the feeling of complete and abounding love isn’t that easy to express in writing.  We are blessed, not only with our amazing children but by a God who is unconditionally loving and taking care of us and by a community of people that have made our cause their’s too. 

We are forever grateful for the help in raising over $8,500 from the Chillin’ & Grillin’ event and almost $30,000 this year.  The awareness is still out there and we are continuing to hit people and receive donations, which is AWESOME.  When I think back to last Saturday, an oldie keep popping into my head: 

It's the Eye of the Tiger
It's the thrill of the fight
Rising up to the challenge of our rival
And the last known survivor
Stalks his prey in the night
And he's watching us all
With the Eye of the Tiger

This song holds such great memories of a great win, a triumph over the odds, a long shot.  That is exactly how I feel about CF.  It will end ok, we just have to fight, fight, fight to get there.  Dean loves his life, he loved his “party” and he doesn’t even know what CF is, let’s keep fighting so we can keep it that way.

Check out the awesome slideshow a friend made, capturing the events of the 2013 Chillin' & Grillin':  http://www.youtube.com/watch?v=wQ73FvIV9-o&feature=player_detailpage

With much love and unending gratefulness,

Jim & Erin


1.       If you didn’t get a chance to get in on our raffles, we do have one left for the year:  Our Each day in July 2013, we will post the winning numbers from the Illinois Lottery Pick 3 EVENING drawing. If your raffle ticket number is the winning number for that day, you win $50. Tickets are $5 each or 5 for $20.  Email if you’d like to get in on this!

2.       Volunteer at the Chicago Speedway on select dates in June or July and raise money for the CFF.

3.       Sign up for a 25 or 65 mile bike with us on September 7th in Geneva, Illinois as we Cycle for Life.

4.       Sign up to climb on November 10th in Chicago, Illinois as Candy leads a team for us up flights of stairs at 300 N. LaSalle as she Climbs for Life.

5.       Try out your Tae Kwon Do skills at Frankfort Black Belt Academy who will donate back to us for every summer program enrollment.

6.       Raise money for us as you take on your next challenge (marathon, bike, swim, run, etc). 

7.       Be an organ donor:  In the past few weeks, you may have read about the plight of a few families trying to save theirs childrens lives.  They are young ones, 10 and 11 in desperate need for a new set of lungs as a result of damage caused by Cystic Fibrosis.  Legalities currently stand in the way and the families are fighting hard to do what they can.  Whether or not they change the laws to allow these youngsters to get adult lungs based on the severity of their disease (as opposed to their age) remains to be seen, HOWEVER, in this case, there is a bit of a simpler solution…register to be an organ donor.  The more people that register, the smaller the issue will be in the future. 
Pig Daddy's taste submission

Pig Daddy - Tom won Best Ribs!

A view from Frankfort's Tower Ladder Truck

Dem Bones Dem Bones - People's Choice 2nd year in a row!

Yummy Dean Cupcakes

Grampa's Sweet Ribs

A sample of the raffle baskets

Saturday, June 1, 2013

Final email for Chillin' & Grillin' for a Cure 2013!

The excitement here is rising as we are only one week away from the second Chillin' & Grillin' for a Cure!
This awesome summer kick-off takes place on on Saturday June 8th from 3-9pm on Yellow Finch Lane in the Cardinal Lake subdivision in Frankfort (60423). You can purchase tickets on June 8th or you can avoid the lines and buy tickets via credit card online today: www.cff.org/great_strides/candg.
We have 8 FANTASTIC chefs geared up and ready to serve their ribs to the 50 lucky people that purchase a rib ticket. You'll get to sample one rib from each chef and vote on your choice for the best ribs. We have two prized Chillin' & Grillin' trophies up for grabs. If ribs aren't your style, don't worry, we have good old burgers, veggie burgers and hot dogs ready for grillin' and some fantastic sides to complement.
Aside from the food, we have over 60 spectacular baskets and items ready to raffle. We have mentioned a lot of them on Facebook already, such as 4 park hopper passes to Disney, Cubs tickets, Sox Tickets, a handmade quilt, wine, spirits, an overnight hotel stay, rounds of golf, zoo membership, passes to Chicago museums, 8 hours of labor from a construction company, Toby Keith, Miranda Lambert, Dierks Bentley tickets, a stay at Grand Bear waterpark, homemade cards, H20+ basket, lottery scratch offs, Kids summer fun baskets and so so many more! If you can't make it but want to get in on the raffles, send us an email or give us a call, we'll send you the list of items and put your tickets in for you!
Besides the basket raffles, we'll continue with raffles throughout the evenings (wine toss, 50/50 cinch bag raffle, CF Madness Tickets sales, guessing jar, etc.) and we'll start the bean bag tourney as Cannonball kicks off the evening with some awesome tunes from the 90s! The beer tent for those of age will be open as long as our supply lasts. The general timeline is below and we're closing off the street so please plan on parking on Nebraska, Morning Dove or Blue Bird.
Don't forget to bring your kiddos! There is a secure cul-de-sac where they can ride scooters or bikes in if you want to bring them along. We'll have a jumpy (donated by Hawkinson Nissan Hawkinson Kia), music by Poochamungas (a kids band) and caricatures, face painting, balloon artist by Art4Clowns, Taekwondo sessions by Frankfort Black Belt Academy and many other kids games to keep the little ones smiling.
You entry ticket includes entertainment by Poochamungas and Cannonball, food (burgers, dogs, sides), drinks (lemonade, water, beer), kids games and dessert.You can also purchase raffle tickets and rib tickets the day of.
Thank you for all of the AMAZING help and support we've had so far and we are looking forward to celebrating with you and raising some dough to find Dean's cure.
With love and gratitude,
Jim & Erin
3-4:30 - Poochamungas
7-9:00 - Cannonball
3-9:00 - Alcohol and Non-Alcoholic beverages included with entry
4-7:00 - Food available
4-6:00 - Rib Tasting from 8 Chefs (limited tickets available for purchase the day of the event)
3-9:00 - Bounce House (generously donated by
Hawkinson Kia, Hawkinson Nissan)
3:30 -
65 Roses kids craft
4-6:00 - Caricatures, Balloon Artist, Face Painting by
4:30 / 6 - Tae Kwon Do sessions by
ATA Frankfort (for kids and adults)
6:30 - Adult Bag Tourney
7:00 – Working hard to get the Hawks game on…
organized kids games throughout the event
3-8:00 - Over 50 Baskets to raffle off, Adult Wine Toss, CF Madness Ticket Sales, Cinch Bag Raffle