Dean's Great Strides Walk on Saturday May 16th

Hello all!  Dean's Great Strides walk is this Saturday, May 16th and we are excited to see you out there at Centennial Park in Orland Park at 9:30 am.  If you have your Eat. Pray. Dean t-shirt from previous years, please wear it!

Dean just asked tonight while we were putting him to bed, when is my walk?  It's neat to see him getting excited, although he cannot comprehend what exactly it all means but Jim and I are so grateful for your support and love.

If you can make the walk this year, PLEASE register by clicking on this link and choosing JOIN OUR TEAM.  If you cannot make it but would still like to donate, click here.

With love, 

Jim & Erin

Great Strides 2015 Walk

Here we go, starting with a Dean update:  The kid is awesome, he just turned 5, loves, loves, loves to build legos and bounce on the trampoline and run around chasing Cali, Owen, Evie.  He loves to count, read his sight words and can bust a move!  On the medical side, he's growing, doing his treatments multiple times a day and recently spent hours at the hospital with labs, X-rays, clinic appt and his first time doing a Pulmonary Function Test.  He hasn't mastered the technique but scored high, which indicates his lungs are staying healthy.  

May is Cystic Fibrosis Awareness Month and we're walking again this year as we celebrate another great year and currently anxiously awaiting some news from the FDA about a drug that is targeted toward those with Dean's mutations (although for ages 12+, we are excited for what the future holds for our superhero).  

We will be at the Orland Park walk on May 16th at 9:30 am again at Centennial Park and hope you can join us!  If you will be there, please register here by clicking on JOIN OUR TEAM:  register here

Hickory Creek, one of the amazing schools in our district hosts a CFF walk each year.  Since our last update, we've been partnering with them to make their walk this year a community event.  Please look for info from the school coming soon for their May 22nd event and how to donate to the CFF through the school.

If you can't join the walk with us this year, but want to donate:  http://fightcf.cff.org/goto/eatpraydean

Thank you time!  Jim's awesome cousins and family from out west are walking for Dean next weekend and a wonderful friend from college will be walking in North Carolina the same day of our walk here.  Additionally, a great big thank you to the Delta Phi Epsilon ladies at UIC who are raising money for Eat. Pray. Dean this year; above and beyond and we're thankful for all of you!

Finally, if you haven't seen the video that Dean was a part of, please take a few minutes to see Dean in action: https://www.youtube.com/watch?v=DySt5tLi4G8

With gratitude,
Jim & Erin and Cali, Owen, Evie & Dean
xo

Other upcoming events
Night at the Windy City Thunderbolts - July 23rd (for more info email:  vizzabe@comcast.net)

CF Cycle for Life - Aug 22 - 30 or 60 miles at Kuijper’s Farm in Maple Park, Il.

CF Climb for Life - Nov 8 - 58 flights, 1200 steps at 300 N. LaSalle in Chicago (Delta Phi Epsilon - we're looking forward to seeing you there)!

Dean, 5