Hello everyone!
Happy (almost) 3rd birthday to our little Dean-o! Dean still loves garbage trucks and building towers, wrestling his brother, watching for the UPS and FedEx guys, playing tag with his sisters, sword fighting, pretending everything is a walkie talkie, baking with Mom and dancing to loud music with Dad. He's awesome. Dean also asks before he eats if a food has fat in it so he can take his digestive enzymes. Dean is a champion and takes daily doses of ranitidine, extra A, D, E & K vitamins and antibiotics when needed. Dean knows how to turn on a compressor to start his nebulized treatments right after he wakes up. He also knows how to put the tubes from his respiratory therapy vest into the compressor and knows which buttons to press to get his twice daily treatments started. He's starting to potty train, he loves to make smoothies and thinks everything he comes up with is a "gweat idea!" He looks fantastic, talks non-stop and tells us how very much he wuvs us. For all these reasons, we can't sit back knowing we can make a difference for him in ways other than what we do daily.
Why we are so hopeful
We're fired up, we're ecstatic, we're on our knees in prayer. This May, phase 3 clinical trials will start for the drug that in combination with Kalydeco (on the market since Jan 2012) we hope will be Dean's cure. The belief that this could be it is too exciting to contain. The small percentage of people that can use Kalydeco are experiencing a virtual cure. The results are pretty amazing and we pray to God that this works. Another CF mommy called this a game-changer and it's true, this has the potential to change the CF world that we live in but we need to keep this going!
What we need from you
We've had two successful years raising money for the CF Foundation through the Great Strides Fundraising event (Illinois with all of you, Nevada with Kalena and Maryland with Marie) and the many fundraisers that were held on our behalf. We are very thankful and so very fortunate to have the help, love and prayers that we do for all of the events! We could not have raised money or awareness in that capacity on our own and we would like to continue raising as much as possible to make sure that the research dollars are there so that Dean's and the 70,000 others with CF worldwide are all cured. So, we have been told countless times that people really do want to help, all we need to do is ask. So we're asking.
- Please consider bringing Eat. Pray. Dean to one of the many walks that are already set up across the nation (it's not hard and we and the CFF will help you find the walk and set up your page - then it's just sending out your email). If we can continue to expand, we could inform so many more people and raise a TON more money! This would make a huge difference to us, our team and ultimately Dean.
- If your own walk isn't possible, we would love for you to set up a page and share our story with your family and friends and join us for Great Strides on May 18th in Orland Park. We know there are so many causes out there, but every penny counts. When people start to branch out, imagine what will happen! Imagine how much more money we'll raise together, and more important, imagine how much closer we'll get to making a better life for the people we love with CF.
- Donate to our page and help us work toward our goal: http://www.cff.org/
Great_Strides/JimandErinBurns - Keep in mind all the Team CF events that are out there and spread the word (Shamrock Shuffle, Chicago Marathon, Barrington 5K, CF Cycle for Life, CF Climb for Life).
Dean's video
Check out Dean's new 2013 video: http://youtu.be/1OBjbOcR-Pk
Save the Dates
Saturday May 18 at 9:30 am: Great Strides at Centennial Park
Saturday June 8 from 3-10 pm in Frankfort: Chillin' & Grillin' for a Cure (this is our BIG FAMILY event that you do not want to miss)
Saturday June 8 from 3-10 pm in Frankfort: Chillin' & Grillin' for a Cure (this is our BIG FAMILY event that you do not want to miss)
Other events we're participating in
April 7: Team CF at the Shamrock Shuffle
June 2: Team CF at the Barrington 5k run
June 22: San Rafael Reno, NV Great Strides
September 7: Team CF at the CF Cycle for Life (25 or 65 mile bike)
October 26: Palm Springs, CA Great Strides
September 7: Team CF at the CF Cycle for Life (25 or 65 mile bike)
October 26: Palm Springs, CA Great Strides
Keep in Touch
New! Facebook: www.facebook.
New! Instagram: cure_cf_eatpraydean
With love and many thanks for your support,
Jim, Erin, Cali, Owen, Evie & Dean
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