Sending out our 2014 fundraising kickoff/email
blast last month invigorated us to keep pushing for that cure. Dean doesn't
stop his treatments ever so why should we? We had a very busy clinic
appointment today and are thankful for the team of people that collaborate to
keep Dean healthy. Today, we met with Dean's CF Specialist/Pulmonologist, his
CF nurse, dietician, respiratory therapist and social worker. We didn't have to
meet with the psychologist or physical therapist this round (although they're
awesome, it makes for a longer visit)! From the last visit, Dean has gained
weight (he's a whopping 17.2kg/37.9lbs) and height is consistently in the
50-75% for height, weight and bmi. We haven't entered the age for Pulmonary
Function Tests yet so a good listen to the lungs and a ton of questions about
him, his eating habits and some other unmentionables, a throat culture to see
if he's culturing any bacteria in his lungs and we're (almost) good to go. I'm
making it sound so easy and today was all positive but the emotional stress for
us can sometimes be unnerving. After we left the appt, we headed to the lab
where they took 30 ml of blood to run about 5 different panels on him to test
different vitamin levels and everything else under the sun! We now wait the
excruciating 5 days to see if he cultured anything (which would require add'l daily
medications). Say a prayer we're all clear.
We'd like to say a quick but very very sincere
thank you to everyone that has donated so far to our events, to those that have
held and are leading fundraisers of their own to help us, to those that are
leading a Great Strides walk team near their house, for those that are training
for a bike, run, climb, for those that have already ran for Dean, for those
that support our events, for those that ask how Dean is doing and genuinely
want to know about him and his health, for those that follow us on facebook,
share our events, help us with everyday life and for those that pray for Dean,
for us and for this cure. We didn’t list
everyone, but we are forever ever grateful for all that you do. Follow us on facebook, where we post all the
pictures and stories and thank you’s as they happen.
We know the cure is coming; we're looking forward
to the day we can celebrate, hopefully soon, but we will be celebrating. In the
meantime, please continue to keep us a part of your life, donate if you can and
join the events we're participating in (listed below).
UPCOMING
EVENTS
More are constantly added, the
complete list can be found at www.eatpraydean.com
but we can make any event a fundraiser for the CFF (email us for more info).
Great Strides Walk on May 17th in Centennial Park,
Orland Park Illinois (Registration at 9:30 am, walk at 11). What is Great
Strides? It is an easy opportunity for you to help us raise awareness and funds
for CF. You sign up via the link below and a fundraising page is created for
you - all you have to do is send it out to your friends and family simply
saying why you're helping us. You can do this for this walk (or if you're up
for a challenge, join our team at one of the events listed below). If you want
to help but don't feel like an event this year, you can definitely donate to
our walk page. A GREAT big thank you to everyone that has
signed up already to help fundraise!
May 4: Team EPD at
the Palos Half Marathon (thanks to Tim &
Michelle for leading and to Dave, Maura & Caroline!)
June 1: Team CF 5k Fun Run, Barrington, IL (join Cali, she's leading this
team.)
July 11: SSPCSC
Golf Outing at Silver Lakes save the date, the South Side Plumbing Contractors
Social Club has chosen us as their charity this year, we are thankful to have
met these awesome group of men who totally have the fundraising thing down to a
science. They’re committed,
compassionate and fun! They are having a golf outing with proceeds to benefit
Eat. Pray. Dean and CFF.
August 16: Team CF at the CF Cycle for Life (this
will be F U N, we have a great team already for this 30 or 65 mile ride – thank
you Kevin, Heidi, Bob, Beth, Tommy, Karen, Tom, Kathy, Pam, Becky & Scott)
October 12: Chicago Marathon (thank you Ryan for running your second race
of the year for us)
November 9: CF Climb for Life (thanks Candy & Greg for leading this and
Becky, Scott and Cali for joining)
Nov 9: Edwards 1/2 & Full
Marathon, Naperville (thanks
Sunni & Tarah for running this one for Dean!)
https://www.facebook.com/EatPrayDean
Donate: http://fightcf.cff.org/site/TR/GreatStrides/45_Greater_Illinois_Chicago?team_id=14277&pg=team&fr_id=2114
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| April 15, 2014 |
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| After Dean's quarterly CF clinic visit |
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