a different kind of perfect

i'm a mom...on a mission...to enjoy life everyday...appreciate the little moments...try not to get so easily annoyed...raise my kids with a faith legacy that leads them to continue to be amazing people...and to make my husband feel as special as he makes me feel.

What is Cystic Fibrosis?

CF is an inherited chronic disease that affects the lungs and digestive system of about 30k children and adults in the US (70k worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that both clogs the lungs and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. [www.cff.org]

Saturday, May 10, 2014

Dean's 2014 Great Strides Walk

On Saturday May 17th, we will be participating in our 4th Great Strides Walk in Illinois.  Since 2011, Team Eat. Pray. Dean has raised over $100,000 for the Cystic Fibrosis Foundation through this fundraising event/walk, Team CF runs, cycles, climbs and other raffles and events.  We know we could NEVER have done this without all of  your help and we are forever grateful. Everyone helps in so many different ways that it is truly hard for us to imagine that Dean's cure will not come.  We're faithful, hopeful and determined that it will so we're never gonna stop until this disease is completely cured, for every one of the 70,000 kids, moms, dads, brothers, sisters, cousins and friends with CF in the world. 

For our local family and friends, please join us for our Great Strides walk on Saturday May 17th at Centennial Park in Orland Park Illinois.  Centennial Park is large and the best place to park is in the Metra station (10401 153rd Street) and walk across to the fields. Registration is at 9:30, team picture at 10:15 followed by the 3 mile stroll at 11:00 around the park and a light lunch around noon. Bring your bag chairs, strollers, wagons, scooters, camera and an umbrella or sun screen. Thank you to the amazing group of people that have already registered and helped us fundraise by reaching their family and friends - we're at 57% of our 2014 goal of $30k!  Please pre-register/donate for the walk here: http://fightcf.cff.org/goto/JimandErinBurns.  We're looking forward to seeing our family, friends and all the new joiners from the elementary school this year! 

A ginormous thank you to Jill and Family in Dubuque who led a walk on May 3rd and Uncle Tom, Aunt Jeanne, Kalena Rod, Brennan, Ellie, Pete, Tomo and kiddos for walking out West this morning for us.  We appreciate all of your love and hope!

Please take a look at the CF Awareness posts we've been posting on facebook this month and for those without facebook, you can read them on our website.

Love,
Jim & Erin

Dean in his friend Grace's yard, he loves being outside!  



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